DOI: 10.3897/rio.11.e176120

Authors: Christos Arvanitidis, Olga Ameixa, Alberto Basset, Eva Chatzinikolaou, Claudia Coman, Berta Companys, Francesco De Leo, Klaas Deneudt, Federico Drago, John Eriksson, Tiziana Ferrari, Teodor Georgiev, Giovanni Giuliano, Stefan Gruber, Jens Habermann, Katharina Heil, Tim Hubbard, Cristina Huertas Olivares, Georgios Kotoulas, Dimitris Koureas, Natalia Manola, Vanessa Marrocco, Nicolas Pade, Ana Portugal Melo, Antonello Provenzale, Fotis Psomopoulos, Niels Raes, Susie Robinson, Patrick Ruch, Dick Schaap, Adrian Stanica, Tassos Stavropoulos, Heliana Teixeira, Peter van Tienderen, Costas Tsigenopoulos, Robert Waterhouse, Giuseppe Aprea, Michel Boër, Ana Casino, Laurent Delauney, Jonathan Ewbank, Ana Lillebø, Michael Mirtl, Jana Pavlic-Zupanc, Lyubomir Penev, Jaume Piera, Paraskevi Pitta, Ingrid Puillat, David Richter, Diana Stepanyan, Anton Ussi, Jan Węsławski, Gabriela Zuquim

Abstract: The interdependence of human, animal, plant and ecosystem health necessitates systemic, cross-domain collaboration to address global challenges, such as emerging diseases, climate change and biodiversity severe change. Through the Crete Declaration, Europe’s (e-)infrastructures, organisations and projects that focus on the functioning of our biosphere commit to jointly advancing the One Health approach. In doing so, the signatories aim to strengthen Europe’s resilience and leadership through the sharing of data and expertise, the development of innovative solutions and the promotion of evidence-based policies.

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DOI: 10.3897/rio.2.e9115

Authors: Chad Hammond

Abstract: Cancer incidence is growing within First Nations, Inuit, and Métis (FNIM) communities, yet research and supportive care is slow to respond to their unique needs and experiences. The proposed project will engage important stakeholders involved in FNIM cancer care within Ontario, including health care professionals, health administrators, and FNIM community leaders. This study builds upon a national study on FNIM cancer survivors. Three objectives drive this research: 1) To identify strengths and needs within FNIM cancer care in Ontario from multiple perspectives; 2) To exchange knowledge of FNIM cancer experiences between stakeholders through arts-based methods, especially photography; 3) To work collaboratively with stakeholders to establish recommendations for improving FNIM cancer care. The project involves early consultations with stakeholders on the most pressing questions and issues in the area. Then, 20 participants (10 health care professionals, 5 health administrators, and 5 FNIM community leaders) will be recruited to use and discuss photos that capture experiences of FNIM cancer care. A report will be generated and dispensed to participants, bringing together various experiences, themes, perspectives, and recommendations for improving the state of care.

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DOI: 10.3897/rio.2.e9113

Authors: Katja Heuer, Satrajit Ghosh, Amy Robinson Sterling, Roberto Toro

Abstract:

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DOI: 10.3897/rio.2.e8649

Authors: Stephanie Simms, Sarah Jones, Kevin Ashley, Marta Ribeiro, John Chodacki, Stephen Abrams, Marisa Strong

Abstract: The DMPTool and DMPonline were developed to meet an emerging need arising from the advent of open data policies and each is now well established as the resource for researchers seeking guidance in creating data management plans (DMPs) in the US and UK respectively. Both services, and their sponsoring organizations, the California Digital Library (CDL) and the Digital Curation Centre (DCC), have succeeded in enabling researchers to comply with funder requirements in producing DMPs. However, this is just one step along the road to advancing open science. We see an opportunity to further leverage DMPs to support open science by integrating them into the broader ecosystem of data management infrastructure. In order to achieve this goal, we must redefine success to include not just adoption of our services by institutions but also widespread adoption by individual researchers, disciplinary communities, and funders. Working together with all stakeholders to make DMPs an essential, open part of the research lifecycle, and not just a matter of compliance, is the next step toward effectively managing and sharing research data. We propose to join forces and build a new, global data management advisory platform that links DMPs to other components of the research lifecycle. The biomedical research community provides an opportunity to adapt the infrastructure and associated educational resources to one specific disciplinary community and plug into new initiatives. We will reposition DMPs as living documents useful for structuring the course of biomedical research activities and integrating with related data management systems to lower the barriers for implementation and promote culture change. Consolidating around a single platform for DMPs extends our reach, keeps costs down, and moves best practices forward, allowing us to participate in a truly global open science ecosystem.

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DOI: 10.3897/rio.2.e8615

Authors: Chad Hammond

Abstract: Cancer incidence is growing within First Nations, Inuit, and Métis (FNIM) communities, yet research and supportive care is slow to respond to their unique needs and experiences. The proposed project will engage important stakeholders involved in FNIM cancer care within Ontario, including health care professionals, health administrators, and FNIM community leaders. This study builds upon a national study on FNIM cancer survivors. Three objectives drive this research: 1) To identify strengths and needs within FNIM cancer care in Ontario from multiple perspectives; 2) To exchange knowledge of FNIM cancer experiences between stakeholders through arts-based methods, especially photography; 3) To work collaboratively with stakeholders to establish recommendations for improving FNIM cancer care. The project involves early consultations with stakeholders on the most pressing questions and issues in the area. Then, 20 participants (10 health care professionals, 5 health administrators, and 5 FNIM community leaders) will be recruited to use and discuss photos that capture experiences of FNIM cancer care. A report will be generated and dispensed to participants, bringing together various experiences, themes, perspectives, and recommendations for improving the state of care.

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